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I’d like to meet others with ulcerative colitis

Digestive Health | Last Active: Jan 29 5:24pm | Replies (49)

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@richardfisher

I was diagnosed with IBD in the last few months. I spent 3 weeks in hospital on IV steroids but now at home on a reducing dose of Prednisolone 30mg currently. I’ve had one infusion of infliximab a fortnight ago and await my next in weeks time because the hospital can’t do it sooner. But the flare continues and I’m still in the loo many times throughout the night. Is this normal at the start of infliximab? I have no idea what to eat to help myself and have had no guidance on that. I’ve been off work for 3 months and need to get back asap but just can’t. And like others I feel pretty desperate mentally at times.

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Replies to "I was diagnosed with IBD in the last few months. I spent 3 weeks in hospital..."

Though the doctors are reluctant to tell you what to eat and what to avoid, there’s lots of advice online and then experimenting with those suggestions has helped me. For myself, I found that eating eggs and toast (sourdough muffins) is good (and need that protein). I haven’t desired much fiber when in a flare using the bathroom so frequently, so put my daily oatmeal on hold. Beef bone broth seems to be quite soothing (not stock) (look for the ones with the most protein and least sodium per cup - which over 250 mg sodium is too much. 9 gm of protein or more), chicken noodle soup too. Lots of water to replace all that lost fluid. Applesauce and bananas. Green tea. Something I’ve discovered that I love that doesn’t bother my stomach at all are avocado rolls from the local sushi places. (Nori, rice, avocado). But, like others have mentioned, different foods work for different people.