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← Return to Severe neck pain, muscle spasms , jaw pain, difficulty swallowing
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Severe neck pain, muscle spasms , jaw pain, difficulty swallowing
About Kids & Teens | Last Active: Jan 28, 2023 | Replies (11)Comment receiving replies
Thank you so much for your response. Please ask as many questions as you want . It may guide me to the right direction. All the doctors we visited are for pediatric and they are all affiliated with children medical center Dallas and Plano . We are planning to go next week to another pediatrician ENT because his current ENT doesn't know why he has all these symptoms and she is the one who is suggesting seeing a different ENT. When we went to the ER first time they didn't test him for mono but a week later when we got hospitalized they tested him and he was negative. All his blood counts were normal expect for ESR and CRP were slightly high . We did MRI on the brain and it came back normal. His Neurologist suggested Pain management specialist because he doesn't want to see him again. So I am planning to take him to another neurologist for a sconed opinion but this is in October. He is also schedule to see rheumatologist in OCT . I will schedule him for Infectious Disease consult I just hope that it is not going to take months.
Replies to "Thank you so much for your response. Please ask as many questions as you want ...."
The head tilt and inability to swallow made me wonder; and think about my issues. I have cervical dystonia that caused my head to tilt to the left. It took a few years and many specialists to get a diagnosis, but I finally can hold my head up, not totally straight, but making great strides with a movement disorder neurologist and botox injections.
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October is a bit away in terms of time. If you haven't done so, ask to be put on the wait list for notification of any open appointments. Patients cancel appointments, frequently, for myriad reasons. Also call the doctor's office manager 1-2 times a week to see where you are on the wait list. I was able to see a specialist who was fully booked for several months because a patient canceled an appointment for the following day only a few minutes earlier.
Another suggestion is to find out when the doctors" office staff call patients to confirm their appointments. A lot of people forget they're on a wait list and go elsewhere so office staff frequently fund out about schedule openings at that time.
Doing the above helps create a kind of relationship with doctors' office staff and become a person they start to know. Which is always a good thing. I've found more workarounds in terms of expediting things with doctors because the nurse and office staff like me and have run interference for me. And the fact that you continue to check on openings means that you are not likely to cancel or 'fail to show' for an appointment yourself. .