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Graves disease: What can I do about hair loss?

Autoimmune Diseases | Last Active: Aug 11, 2022 | Replies (11)

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@sueinmn

Hello, I had Graves in 2010-2012 brought on by heavy metal poisoning. As the metal poisoning resolved, just before I was to undergo thyroid ablation, the Graves began to heal on its own. By the peak of my Graves, I had lost 20% of my body weight, 50% of my hair, had a constant rapid heartbeat constant tremors. By 2015, I regained most of the weight and all of my hair (per my stylist, who has been taking care of my hair since about 1999.) Unfortunately, the tremors have taken up permanent residence but only manifest themselves about 1/2 of the time. My heart rate continues to be too fast whenever I exert myself (like walk up a flight of stairs.)

The fact that you had radiation may be a complicating factor. What does the endocrinologist have to say on the issue?
Sue

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Replies to "Hello, I had Graves in 2010-2012 brought on by heavy metal poisoning. As the metal poisoning..."

Hi! I have seen 2 endocrinologists, two dermatologists and my primary care provider. They've done testing of all kinds and just end up saying labs are all good and it must just be something that happens. it is frustrating to watch yourself slowly lose hair. My Graves journey has been brutal. Have had orbital decompression and strabismus surgeries along with permanent double vision. I guess I shouldn't let the hair loss bother me, but it does. People make fun of you and it hurts.

Hi @sueinmn 😊
You mentioned that you had metal poisoning. What is that and how did they confirm it?
I am curious if it's something like eating too much tuna salad and overloading on mercury?
Thank you for sharing!