Thanks, Colleen. I feel we lobsters are a little bit of a unique group and the more specifics we can share, the better for all of us in the ILC category.

As for myself, I was on Letrazole for nearly a year and the joint pains were problematic. I also had concerns about becoming resistant to the Letrazole and have heard that Letrazole can bring back recurrences that are more difficult to treat...although I'm not sure of the accuracy of that statement. So I've just been switched to Tamoxifen, which is mostly for premenopausal women, which I am post, and which is not the preferred drug for ILC, so now I have new worries if I'm on the right drug. In addition, my genetic test showed a genetic risk for uterine/endometrial and ovarian cancer, which can be a side effect of Tamoxifen, albeit small, but I don't sleep easily knowing that. From what I've read, it takes about two years on Tamoxifen for uterine cancer to show up so hopefully this will just be a short-lived stint for me and then back to an AI. I'm 3 years out from lumpectomy and radiation, ILC Stage 1, Grade 3 pleomorphic, the trickiest of the tricky.