I identify with this comment because 2 docs literally gave up on me, and, finally, I started treating myself. My physical problems included sensitivity, pain, and swelling on the left side of body, which followed from a mistreated UTI and eventually left kidney infection. Complicating everything and confusing all the docs involved was my primary and secondary autoimmune suppression, with 3 of my measured gamma globulins extremely low, including a negligible amount of IgM. This meant my immune system had little ability to suppress an infection, which had been initially treated and partly subdued by antibiotics. I have a lifetime history of all kinds of infections, in head, ears, sinus, meninges, lungs with bouts of pneumonia. In my middle 70's was my first UTI spreading to a kidney infection with worsening complications. In 2014, after discovering I needed a heart valve replacement because of bouts of pneumonia, I prevailed on a family friend, an immunity doctor who had treated my chronic sinus infections, to start me on replacement gamma globulin (Hixentra). Weekly Hizentra infusions only replaces IgG, one of the three gamma globulins, so my IgM severe deficit meant my body would fail to take over at the end of an antibiotic, usually after 10 days or two weeks. The specialists treating the UTI did not listen to my urging to continue temporarily successful treatments until the infection was worn out (as former docs had), so my UTI worsened and spread to one kidney, then the other kidney, abdomen, bladder, and probably my ureter. The spread of infection was taking place during and after multiple courses of various oral antibiotics, which were, I believed, creating superbugs. I prevailed upon my new primary doc to give me two weeks of an IV drug (which I researched was specific for resistant antibiotic kidney UTI), which could be delivered by emergency outpatient at a small hospital in a neighboring city. The treatment was unsuccessful for a number of reasons, for many skipped and delayed infusions. Even if the IV infusions were meticulously administered, a two week schedule could have failed due to the shortness of the regimen. It was not meticulously administered, and I knew from years of experience with three docs who did listen in the past, and treated infections with antibiotics until they were worn out, that the small town Oregon docs who never listened would not be able to help me. A few months after the failed IV, I was in such abdominal pain, the doc ordered two weeks of another IV, which also failed. I was so infected abdominally and genitally. I couldn't stand up straight, but walked fairly hunched over. Then this primary doc stated he didn't know what else to do. Then I contracted a SARS infection with severe symptoms similar to Covid, but before Covid was active in the US. With everything happening to me, I felt as if I was going to die, and without any doctor I trusted. I obtained antibiotics in various ways and started using them in doses and with a regimen that suppressed my severe cough and multiple organ infections. I researched what I was doing in medical journals. I used the antibiotics in whatever mega-doses and combinations suppressed the infections and continued using them for nine months until i was almost free from pain. I nebulized colloidal silver for my absent sense of smell, congested lungs, and severely infected left ear. The Uti and now double kidney infections were also healing as the antibiotics eliminated the upper respiratory infections. The pressure and pain in my abdomen and bladder were diminishing over time during the antibiotic-colloidal silver treatment. I was watching out for the difficile diarrhea, which never appeared. I was left with a tendency for both legs to fill somewhat with fluid, which would interfere with the Hizentra infusions (into both thighs) to some degree, but learned to use colloidal silver for four or five days to counteract the problem. I was left with a permanent tendency for the left side of my body, including my face to hold some excess fluid, which was the side of my first kidney infection which also retained some slight residual tenderness.

Thanks for clarifying, Pacificguy. I've added your question to the Digestive Health group too. Let me tag fellow members like @pwgrimes @scootwagon @astaingegerdm @sue225 who have experience with celiac disease who may be able to add to the discussion.

Have you notice any food or activity that causes flares of bloating, burning and/or frequent urination urges?