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Peripheral Neuropathy - has anyone had any real relief.
Neuropathy | Last Active: Aug 10, 2022 | Replies (4)Comment receiving replies
Hello Sleepygirl @alvamaeyaert, Welcome to Connect. You ask some really good questions. I think the answer is a mixture of yes, no and maybe depending on who is asked. I think this is because neuropathy has such a wide variety of symptoms and each of us are a little different in how we are affected and react to the symptoms. I have idiopathic small fiber peripheral neuropathy and shared my story in another discussion along with other members here -- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/.
Here are a few discussions you might find helpful:
-- Small Fiber Neuropathy: What helps?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/
-- Eliminating Foods for Neuropathy pain: https://connect.mayoclinic.org/discussion/neuropathy-pain-1/
-- See the list of all discussions in the Neuropathy group: https://connect.mayoclinic.org/group/neuropathy/
You mentioned you really need something to help you sleep. Is it your pain from neuropathy that keeps you awake? Do you try to keep a regular sleep schedule?
Replies to "Hello Sleepygirl @alvamaeyaert, Welcome to Connect. You ask some really good questions. I think the answer..."
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Hi John,
Yes it’s the neuropathy that keeps me awake, my feet mostly sometimes my hands too. they tingle, pin and needle, throb, jolting sharp pain that is just relentless I can not lay still always moving and bouncing my legs. 3-4 nights a week I have to get up and lay somewhere else as not to bother my husband, he says I move all the time when I’m sleeping.
As far as a sleep schedule I do pretty good during the school year but in summer it’s harder we have livestock and a large acreage to keep up so I get pretty busy up till dark so having a bed time ritual is not easy. And we eat supper/dinner way to late.
I guess what I’m looking for is a way to keep the pain from disturbing me as I try to fall asleep once I’m asleep I don’t often wake up from the symptoms.