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@lorrie2772

Hi, absolutely I want to plan for the future. What I don't want to do is live my life today as if the future is here. I, too, have fear of what will happen. How long will we be able to live in our home? Right now I am still working. How long will I be able to work. She is in the very early stages and is still independent most of the time. I have thought about moving or at least looking into care facilities that provide step-down services. It is totally overwhelming that's why I can't get too far into the future.

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Replies to "Hi, absolutely I want to plan for the future. What I don't want to do is..."

Hi @lorrie2772, trying to manage what's happening with your wife and working must be difficult. Do they have an Employee Assistance Plan at work where you can talk to a counselor or a local Office of Aging with some resources?
A lot, I think, depends upon the progression of the disease. My husband's is very slow. His short and mid term memory is gone, but he still functions well, although he doesn't drive , manage finances, or get involved in any home maintenance. He was relieved to give these things up and is happy to have me do it all and be his guide. I have those care facilities in my sights, but I think a move like that is a few years off.
Don't forget to carve out sometime for yourself so you can replenish your resources. It's important for us to stay healthy and strong, as possible, for ourselves and because our partners rely on us so heavily.

One of the things I found helpful is to go look at a care facility before one is needed which gives one time to process all the emotions that go along with such a huge change. Also, it gives you the ability to learn about what services places provide and compare layouts, services as well as to determine what you believe is needed--before life gets too stressful and you have to make a move NOW. There are usually long waiting lists (years) so if you find a facility you may truly wish to consider, put your name on the list with the right to turn it down should you determine you are not ready at that time.
It is very hard not to look ahead to the future; one breath at a time, moment by moment. Some day today will be 'the good old days.'