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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)
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@ldingwall88

I'm getting about 90% relief at the moment, so long as I time the dosages correctly. At first I was told to take it early in the day, but it wore off. Now I take 3 pills between 8am-2pm and the last around 7pm which gets me through the night. I know everyone is different, but all the horror stories about prednisone make me anxious--especially if it's going to be a slow process for me to get below even 20mg, as my neurologist suspects will be the case. I hope to hear from someone in a similar situation. Thanks for your insights.

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Replies to "I'm getting about 90% relief at the moment, so long as I time the dosages correctly...."
John, Volunteer Mentor | @johnbishop | Aug 8, 2022

Good to see you are getting some relief. I can't begin to imagine having this disease without having prednisone to help. There is a book that I've heard others recommend that some folks have found helpful.

Polymyalgia Rheumatica and Giant Cell Arteritis: A Survival Guide
by Kate Gilbert: https://www.goodreads.com/en/book/show/30843103-polymyalgia-rheumatica-and-giant-cell-arteritis

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kmeikle1 | @kmeikle1 | Aug 8, 2022

@ldingwall88 Split dose sounds like a good idea for you. Once you are stable and start to taper, take it slow and easy (usually not more than 10% reduction at one time). Only taper if you are doing reasonably well (90% relief may be good enough).

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