Yes I will post again after hearing from my doctor this week. I have also located a doctor in San Francisco who is doing a study on those with my condition, and I intend to contact her. What I find most bothersome is that my doctor suggested that I get a second opinion, however no Sutter doctor in my area will provide me with one. I have never heard of a doctor telling a patient to get a second opinion as I thought it was the other way around. In any event, once I hear from the doctor I will provide an update. Mostly I am concerned with my weight loss and overall lack of energy, along with protein deficiency and malnutrition that were revealed during recent labs.