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Discontinuing MAC antibiotics

MAC & Bronchiectasis | Last Active: Nov 27, 2023 | Replies (73)

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@totty

We are new to this exchange. Diagnosis Bronchiectasis. Does anyone have chronic cough?
Chronic fatigue? How much do these affect your day? The chronic cough is how we got the Bronchiectasis diagnosis but the fatigue has recently taken its toll.

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Replies to "We are new to this exchange. Diagnosis Bronchiectasis. Does anyone have chronic cough? Chronic fatigue? How..."

In reply to @totty….. I have bronchiectasis but have never had MAC/NTM’s. I nebulize twice daily with albuterol and 7% saline solution while wearing a smart vest. I have a chronic dry cough and regular bouts of excessive fatigue. The fatigue I manage by breaking activities into small steps and taking breaks. I do not nap so I can sleep well at night. I have the advantage of being retired now, but when I was working, I pushed through my daily schedule and collapsed until the next day. Fortunately, I did not develop bronchiectasis until after my children were grown up. I had enough struggles with chronic migraines since childhood, but did everything I could to give my everything to my kids❤️ Good luck in your journey😊

I have had a chronic cough for 3 years and recently diagnosed with Bronchiectasis. None of the treatments have gotten rid of my cough. It affects many areas of my life including my sleep so I am always fatigued.

I am new to this exchange. I have had a chronic cough since 2015. I was diagnosed with Fibromyalgia in 1995, and in 2015 suddenly I ended in hospital with congestive heart failure, my mitral valve was prolapsed, and had severe regurgitation. I had my mitral valve repaired with open heart surgery. I have had what they call a chronic cough since. Sometimes I have wheezy chest, often my lungs sound clear they say. I have tried every med and puffer possible. They think my eyes have been effected by the steroids in the puffers. I am exhausted from coughing, nothing seems to help. My respirologist has run out of ideas. Any suggestions?