Yes, it is terriffying, especially in the beginning of this journey into the unknown. Does living in the moment mean don't plan for the future?
We're pretty much on our own here, and at this stage, I don't know how my husbands's disease will progress. Will I be able to care for him at home or will he need long term care in a residential facility? A couple of months ago, I was seriously considering moving to a senior housing type of place with easier access to healthcare for serious conditions, which I worry we'll develop in the future. I read some comments here by women who said their husbands got much worse when they moved. My husband loves our home and feels comfortable in the neighborhood, so maybe moving isn't such a great idea. What I can do now is get rid of stuff we've accumulated over the years so any future move, if necessary, will be easier. But I panic sometimes at night, overwhelmed by the thought of decluttering!