← Return to Axonal peripheral neuropathy: Finally, a diagnosis!
DiscussionAxonal peripheral neuropathy: Finally, a diagnosis!
Neuropathy | Last Active: Nov 3, 2023 | Replies (115)Comment receiving replies
Replies to "To Ray - In Feb 2020 Mayo in MN gave me the idiopathic axonal sensorimotor PN..."
To NJ Ed
I have bi-lateral drop foot due to axonal peripheral neuropathy. For several years I was using AFOs that fit inside my shoes. I even had custom made AFOs that did not work for me at all. I changed orthotic clinics and learned about TurboMed AFOs. These AFOs clip to the outside of your shoes and are a game changer! I wear shoes that actually fit my feet and have much better mobility. You might want to check them out at: Turbomedusa.com
You are right there is no cure yet, but
I just wanted to share with you, that I had some of the same pain symptoms. My diagnosis is severe axonal sensorimotor polyneuropathy. It took me six years to this treatment that actually works! If you would like to know more about the RST Sanexas treatment that I got I would gladly send you my story. Let me know. Wish you the best!