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Discontinuing MAC antibiotics

MAC & Bronchiectasis | Last Active: Nov 27, 2023 | Replies (73)

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@melissa08

Oh Sue, sorry you had such a difficult time. Seems like my husband is on a similar track. He is in agony with SOB, and now the back pain, lost a ton of weight, and losing faith in the “cure”. I will pass your note along to him, my born in Minnesota guy. Thank you so much, once again.
Melissa

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Replies to "Oh Sue, sorry you had such a difficult time. Seems like my husband is on a..."

Don't get me wrong - my MAC was severe enough that I don't think I had a choice but to do the antibiotics. It's just that our bodies cannot always handle them.
But I also think 7% saline & airway clearance are really a relatively new "key" to keeping the MAC at bay. Maybe the experts will rethink their 12 months with no positive cultures protocol, and look more closely at what is going on in each person's lungs and body.
Sue