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Discontinuing MAC antibiotics

MAC & Bronchiectasis | Last Active: Nov 27, 2023 | Replies (73)

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@sueinmn

Cold turkey! I never had a negative culture, just got to the point where I could no longer tolerate the side effects and my lungs were looking "better".
I have stayed healthy for 20 months now with 7% saline nebs, mucus thinning meds and airway clearance.
Recovery from the side effects took another year, but I began feeling better within about 2 weeks. I don't know if I would ever take the big 3 again...
Sue

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Replies to "Cold turkey! I never had a negative culture, just got to the point where I could..."

You said you took mucus thinning meds.
What did you take?

Hi Sue. I have been on Ethambutol and ariththromycin one month. By the fourth week I started getting horrible tinnitus and intestinal blow out. Gas. Gurgling. Sick as a dog. I’m not continuing the meds. Can’t hack them.