Hi Ray - Welcome back, I am glad you got a diagnosis, however vague, and thanks @johnbishop for linking us. I am going to be honest, when I read all the discussions about those diagnosed with Small Fiber Neuropathy (SFN), so many of the symptoms are almost identical that I have learned a lot from those discussions on managing symptoms. I was hit suddenly with my axonal PN (idiopathic), within 2 weeks of first sign of weakness going on, I became wheelchair bound for 6 months. I can walk/waddle short distances now and am good around the house, but basically use a walker, and learned to drive. I just can't squat, and my arms and legs have numbness, tingling, pain, and weakness. I get by typing and writing, but I lost a lot there. They are also very sensitive to heat and cold, which is usually caused by my body, just not external temperature.
My 2 best friends have been physical & occupational therapy and Gabapentin. PT got my balance back, helps with gait, and keeps me as strong as I can get. I pretty much use as much as insurance allows, and it's worth my co-pay. Gabapentin took a while to kick in; I was in a rehab facility at the start, and as dosage got right, it probably took about 5 weeks to where I didn't have to wear gloves all day & night. I still have to wear socks to bed and all day. Heat intolerance is normally external temperature related. So I'm not as comfortable in hot sun and have to control water and car temperatures that hit my hands and feet directly. Gabapentin has really gotten that aspect more tolerable, and helps with the nerve pain, and reduced the amount of numbness and tingling (but that's 24/7). If I miss a dose of Gabapentin I pay for it unfortunately. I tried Lyrica & others, but everything made me dopey, and with my condition, I'm not willing to risk a fall going to the bathroom in the middle of the night.
From other discussions here and mostly from those with SFN, I've learned so much about things to try, from shoes, toe guards, exercises, lotions, vitamins (alpha lipoic acid), lidocaine, Integrative Medicine (I liked Acupuncture), and the biggest thing, Positive Thinking from our great mentors. I have been reading with interest about CBD type therapies but have not tried any of them. So, read on, and you might be surprised how much synergies we have with SFN remedies! Best wishes on living as actively as we can with this thing, while we still hope for a cure!