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Permanent SIBO due to removal of ileocecal valve

Digestive Health | Last Active: Apr 2, 2024 | Replies (191)

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@tiss

I have not heard of Nascobal but will ask my dr about it next time I see him. Would be nice to find a b12 med I don't have to go to Drs office once a month for injections.
As far as my GI prescribing long term, daily xifaxan, I guess I just lucked out. He gets it that this SIBO will only be controlled by meds, not cured. I fired my old GI about a year after surgery because he had NO CLUE about SIBO and didn't really believe it exists. I am on Medicare so it costs 800.00 a month. Not what we had expected during retirement. Xifaxan won't be going generic until 2028. I hope I live long enough to pay zip for it!

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Replies to "I have not heard of Nascobal but will ask my dr about it next time I..."

I’ve failed a few breath tests and they did aspirates as well. I’m a case of permanent SIBO unless someone invents a valve replacement (and this has been the case since the colectomy to rid me of cancer in late 30s…ugh).

If your GI was on east coast I would prob go there. Lol. I’ve been taking 4 antibiotics on a rotating basis for a few years. We test every now and then for C diff. and always come back to more antibiotic fun.

Search:
‘Herbal Therapy Is Equivalent to Rifaximin for the treatment of small intestinal bacterial Overgrowth’.

A 2014 study from Johns Hopkins, Dr GE Mullin

For B12, an Rx from your MD for Cyanocobalamin and you can easily self administer. Cost is inconsequential with GoodRx.