I started having acute knee pain in the middle of the night April ‘22. Then, the pain went in different sites and jumped to different parts of my body. I had all kinds of things, sonogram, X-rays, Dr. PCP, Ortho,, pt, Accupunture, massage ice, heat, TENS. I called Mayo to see if I could get in. They said they were not taking new patients. I got in to see Dr., She thought it was just my knee and that the pains were from favoring my knee.
The end of May, I went to emergency for pain and headache.(I was in another State) Dr did an MRI of my brain, and gave me a hydrocortisone.and a Rx. It was 2am. The next morning, @ 5am, I could not sit up! I had to call EMT to get me off the floor! The Rx (filled @ 9helped). Still intense pain. I flew home. My blood pressure went to 195/120, Emergency again. Blood test, chest X-rays. Next day, Dr. Rx’d high blood pressure med., 2 days later, Then the blood test: showed my inflammatory was @ 69 ( marker was 0-30). DR put me on 10.mg. I Felt better in 2hrs.
2 weeks later, Rhumatologist next,- 40mg. And blood test. Diagnosed w/poly and possible ACR.
Next, biopsy, vascular surg., was neg for ACR.
Eye DR. : Just said no inflammation in the back of my eye. (Starting cataracts). My eye symptoms came on in May.
TIP: eye Dr. Said,”Focus on a object, (switch plate) on the wall. Look straight at it.
Cover 1 eye, look at it. Now, imagine a 2’ diameter circle. Now do the other eye.If you can see a pie shape taken out, call the Dr right away. The blood is not getting to that part of the eye.You won’t see this if you look thru both eyes. Do this am & pm, it comes on quick. (My eye site is worse.)
Last of July, rum/Dr. Blood test. Reduced my predinzone to 30mg. Gradually tapering. 10 in 2mos. In 2 days my symptoms started back. The 3 day, I went back on 40mg. Symptoms got worse.
I am doing more work, I can do nothing on Sun. So I hope this will be positive. I don’t want to stop being active. My muscles feel they are shrinking. My skin is papery. I have “Old lady bruises on my arms.”😳.
The thing that does help, Salonpas patches! I take Tylenol Also.. D3, Mag, C, multi V, cal.
Today it is worse. My life has sure changed! I appreciate everything I CAN do.

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