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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)

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@maryft

kmeikle1,
I did wean off the prednisone, after being on it one year, and I will never go back on it. I was Osteopenic when I started on prednisone, a very active 77 year old, and am now full blown with Osteoporosis! I suffered a fractured rib and a fractured vertebrae, in two separate incidents this year, plus had almost every prednisone side effect listed. I also ended up having cataract surgery!! It's my understanding that prednisone is the only known medication that relieves PMR, but I had no clue what an impact it could, and did, have on my body. People react differently to meds, but I would strongly suggest anyone being on it have a bone density test!!! Currently, I'm listed as high risk for fractures and will need to do daily injections (in my stomach), for 2 years, to rebuild my bone. These injections will cost me +$500 a month, out-of-pocket, unless I can qualify for assistance from the pharmaceutical company. I've been advised by my endocrinologist that I seriously need to do this. My objective here is to make people aware of the importance of bone testing if they're on prednisone long term!! I t is critical!

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Replies to "kmeikle1, I did wean off the prednisone, after being on it one year, and I will..."

I've been on the Prednisone for 3 years and tapering for second time. I've been treating the bones with Reclast infusions once a year for 3 consecutive years. I will have my third in March. My Rheumatologist and Endocrinologist are managing my bones. I walk a lot and take calcium pills. My husband is an Ophthalmologist and examines me frequently but was more concerned in the beginning of my diagnosis with a stroke or blindness than cataracts. I have aches and pains all over but still get out and walk 4 to 5 miles 5 days a week. It keeps bones strong.