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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)

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@kmeikle1

@maryft It is confusing so you need to do your own research and then of course listen to your body. According to Mayo the average duration of PMR is 5.9 years. Prednisone (or some form) is the only medication that is effective at treating PMR. So, many people are on prednisone for many years. I've been on it for three years. I don't want to be on it, but without it I'd be incapacitated with pain and lack of mobility. If your starting dose provided relief, you stay at that dose for awhile (I think usually 4-6 weeks) and then try to reduce your dosage very slowly. If the pain returns you've gone too low. The objective is to get as low as you can while controlling pain. Everyone is different. I started at 15 mgs. and three years later I'm still at 11 mgs. A few months ago I tried to rapidly decrease (to prepare for a surgery I have yet to have). I was so excited when I got to 7.5 mgs. I was okay for a few weeks and then it was like I was hit by a truck. So I followed the flare protocol and went up to 12.5 for 10 days and now I'm slowly trying to reduce. Unfortunately your body will dictate how low you can go. If you try to go too fast, the inflamation will accumulate and you'll have a flare. You don't want to yo-yo. Take it nice and easy.

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Replies to "@maryft It is confusing so you need to do your own research and then of course..."

kmeikle1,
I did wean off the prednisone, after being on it one year, and I will never go back on it. I was Osteopenic when I started on prednisone, a very active 77 year old, and am now full blown with Osteoporosis! I suffered a fractured rib and a fractured vertebrae, in two separate incidents this year, plus had almost every prednisone side effect listed. I also ended up having cataract surgery!! It's my understanding that prednisone is the only known medication that relieves PMR, but I had no clue what an impact it could, and did, have on my body. People react differently to meds, but I would strongly suggest anyone being on it have a bone density test!!! Currently, I'm listed as high risk for fractures and will need to do daily injections (in my stomach), for 2 years, to rebuild my bone. These injections will cost me +$500 a month, out-of-pocket, unless I can qualify for assistance from the pharmaceutical company. I've been advised by my endocrinologist that I seriously need to do this. My objective here is to make people aware of the importance of bone testing if they're on prednisone long term!! I t is critical!