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About to start Prolia: What's your experience?
Osteoporosis & Bone Health | Last Active: Feb 27 10:57am | Replies (126)Comment receiving replies
It's good to read about your plan. I have read that osteonecrosis mostly happens with women who have the larger doses for cancer, and as you said, that the atypical femur fractures occur after several years.
So I met with my doc yesterday. I wanted to post the plan for me. He does give me some choice. I will do Tymlos for 18 months (I have done 9 months). DEXA in 5/23. Then, due to my sensitivity to meds, he will do an infusion of 1mg Reclast (full dose is 5mg). If I don't react I will do the other 4mg in a month or so. He will monitor me via DEXA and thinks I can do just one infusion to "lock the gains in" and take a break. I will do Evenity in the future if needed.
I really had a tough time deciding between Tymlos and Evenity. My hip is -3.9 as I remember but I have 7 spinal fractures. I believed I could do Evenity after Tymlos but not the other way around but doc says insurance may not cover. Hoping for some improvements! Good luck and thanks for the info!
ps I did not know Prolia was so good for spine. I may ask about a year of that after all, or at least discuss that option with Reclast to follow.
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it's always good to know as much as possible before meeting with your health provider, and this group has been very good at not just giving their own information and experiences, but in encouraging me to do other research on my own.
I was absolutely pole-axed by the osteoporosis diagnosis, and when my Doc put me on Evenity, I just went along. She did discuss a couple of options because I was concerned about the slight increase in risk of coronary/stroke issues, but in hindsight, it seems it was a pretty good decision (That said, who knows what tomorrow will bring?)
With the ability to control the dosage as well as you do, probably the Tymlos was the best option for you.
Let's face it, it's all a balancing act and we can only do the best we can do to try and maintain an reasonably active life with a positive outlook.