← Return to About to start Prolia: What's your experience?

Discussion

About to start Prolia: What's your experience?

Osteoporosis & Bone Health | Last Active: Feb 27 10:57am | Replies (126)

Comment receiving replies
@windyshores

How long was she on it? I was surprised my MD did not mention the atypical fractures that happen (though rarely, and usually after some years). As I said, he will not prescribe for me and I was surprised he uses it at all.

Personally I will not take it. When I wrote that he said it was a "good drug" I should have put it in quotes.

Jump to this post


Replies to "How long was she on it? I was surprised my MD did not mention the atypical..."

I had a meeting with my Dr. the other day and was able to ask some good questions about my treatment going forward after I've finished with Evenity. The fact that I've learned so much and have really put some time into researching different medications is due to the knowledge I've picked up here.
Anyway......my T-score was minus 3.4 on both spine and hip in January. According to her, Evenity is very good at growing hip bones, but less so the spine. Should I get really good results on both, she recommends that I go to Reclast for a year or so, then maybe take a break. Should the spine numbers not improve enough to move me to Ostepoenia land, she would suggest I go on Prolia for a year (it's supposedly very effective for spine density) then go to Reclast. She is careful to transition patients and doesn't just end the Prolia with nothing else in place.
The only cases she has seen of women with atypical fractures were women who had been on Fosamax or the early drugs for over 10 years (and according to her, their doctors just left them there) and she though there had been less than 5 of them. We also talked about osteonecrosis, which she says does occur but is very rare, especially on Evenity. As a matter of fact, if I need deep dental work done, she recommends I do it before I end my Evenity shots.
I've had 5 Evenity shots, and after the first couple have had no side effects other than some injection site pain for a day or two, so