I had Covid June 21, 2022, I also have Crohns disease and a clotting disorder (APS).
I have felt like I've had an alien living in my gut ever since my Covid diagnosis. 2 weeks ago I had an episode of complete loss of fluids through every pore in my body, hair dripping, total dumping of diarrhea and cold sweats. The next day I was due for My Remicade infusion and 1 hour in to the infusion had a seizure (never happened before) and syncope that landed me in the hospital for 3 days.
Nothing of great significance was found, they even did a colonoscopy but wouldn't do any biopsies bc I'm on eliquis.
I was released with a diagnosis of long haulers Covid in my stomach and they wanted me to take 100 mg of steroids a day (I declined!) I have been on low dose steroids daily since 2005 and I take florastor daily as well.
I have lost 40 lbs since before the first of the year and experience difficulty swallowing, so I'm an ensure drinker twice daily. Non-smoker, non-drinker.
Doctors seem stumped and just say there isn't enough research and would rather use me as a guinea pig and guess as what to do.
Any real ideas out there??
They checked for parasites

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