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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)

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@macferse

Hi, I am specially interested to read the very wide range of experiences of people tapering their Pred. dosage. I was given a pattern of monthly reductions by Rheumatologist, while my friend who developed PMR at almost the same time as I did, was given a very different pattern by her GP (neither based on test results) Three months in, a subordinate member of my hospital's Rheumatology team advised slowing my tapering down. Instead of 15, 12.5, 10, 9, 8,7 etc monthly, he recommended monthly reduction : 10, 10 and 9 on alternate days, 9, then 9 /8 alternate days and so on. This was based on no test results, no recurrence of pain, simply a preference on his part. Having already developed the full range of unsightly side effects, I was disappointed to have to prolong the process. I have had no in depth explanation of theories relating to this with Rheumatologist. I am interested in what I understand in your message to suggest that the adrenal system should be expected to start kicking back in around 7mg. Can anyone confirm this, either as medical knowledge or anecdotally. Thanks in advance for all your advice.

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Replies to "Hi, I am specially interested to read the very wide range of experiences of people tapering..."

@macferse Here is an article that explains a bit more re. your adrenals. You should be able to find a lot on-line. I just read an article that suggests adrenal issues might not show up until you get lower than 7 mgs. (maybe 3-4), but there's a range and we're all different (which is why you won't find many difinitve answers).
https://healthunlocked.com/pmrgcauk/posts/private/146749826/reducing-steroids-activating-the-adrenal-glands