← Return to "Electric Shock" type pain in my scalp!

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"Electric Shock" type pain in my scalp!

Chronic Pain | Last Active: Mar 28 10:24am | Replies (301)
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@johnbishop

Hello @kjelley, Welcome to Connect. Thank you for sharing your story. It great to hear you finally found something that provided real relief after 12 years of pain. There is another discussion you might find helpful:

-- Occipital Neuralgia: https://connect.mayoclinic.org/discussion/occipital-neuralgia/

I've tapered off of prednisone twice for Polymyalgia Rheumatica so I know that can be challenging at times. My rheumatologist had me keep a daily pain log along with the prednisone dosage for the day. When it came time to taper, if my pain level was more than a 1 or 2, I stayed at the same dose for a few days and tried again. Sometimes I had to go up by half of the previous taper but finally was able to taper completely off of the prednisone.

Did your doctor suggest a tapering schedule?

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Replies to "Hello @kjelley, Welcome to Connect. Thank you for sharing your story. It great to hear you..."
doloresmacneil | @doloresmacneil | Aug 4, 2022

I have had PMR have shock like jabs that are very painful and cause me I scream instantly. Areas affected vary throughout all body areas; PMR prednisone dosage varies frequently; initially 10 mg. ; tapered to 5; 8 mg. Due to flare ups.

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Ranger | @kjelley | Aug 4, 2022

Hey John,

Thank you for the welcome, and the reference to the ON discussion group.

I went from 10 mg / day for about a decade, and when I started feeling better from the surgery I tapered to 5 mf/day on my own with no trouble. Rather than free lance my taper, I started seeing a new rheumatologist (my past one retired), and she has me on 4 mg/day in the morning for one month, then I'll go to three for a month, and so on. She said that I will probably start having trouble when I reach 2 mg/day, and we scheduled an appt for the time frame to check in with her.

4 mg / day is going ok for three weeks now. Have had to bump up to 5 a couple times but the next day right back down to 4. I'm still in the "I can't believe the surgery worked" phase, which is such an incredible feeling. I had just about given up hope for any serious improvement. Life is good again.

best,

Kevin

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