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@randihenry

Hi, I had a spinal fusion and lamniplasty on march 2022. I had horrible nerve pain from a cyst leaning on the nerve. After surgery I had no pain at all. It was a amazing. Now i started Tymlos about 10 days ago. All of a sudden I am feeling flashes of the nerve pain again, My doctor said it could not be the Tymlos and has quoted to me all of the med trials etc. I do see that occasionally this drug can cause inflammation. Has anyone had a similar experience ? I dont know what to do.
Thanks

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Replies to "Hi, I had a spinal fusion and lamniplasty on march 2022. I had horrible nerve pain..."

I have not read that Tymlos can cause inflammation. Can you share this?

It does cause bone growth and occasional "growing pains" but at 10 days out not sure if that is the cause.

Some of us persisted with this medication despite an apparent severe side effect. What helped me was starting at two clicks out of 8 and moving up. I have been at 7 clicks for several months after starting slowly.

Hello @randihenry and welcome to Mayo Clinic Connect. What fantastic news about your surgical outcome, first off. With regard to your starting Tymlos and the recent onset of of nerve pain, I wonder if your doctor mentioned if this would remain as an ongoing symptom while taking the Rx or if you could expect to see the inflammation dissipate over time?

Maybe you are sensitive to something in the Tymlos formulation? People can have reactions to injected antibiotics but tolerate the same antibiotics in oral form.