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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 4 hours ago | Replies (1229)
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@stratus111

Hi i recently learned about this disease that matches up so perfectly with what I have been experiencing for 4 years now. Ive lost 46 pounds, and I am 6'3 and male, and was very lean to begin with.

Besides the stomach getting super full right away and the constant pain and nausea and burping, did any of you ever get very terrible dizziness, light headedness and almost faint after eating.

After eating I can feel my pulse in my temples, my mouth and jaw and it feels likes its pounding away while I almost pass out.

I havent been able to find a good list of surgeons or Drs who know about this and can test for this, and what are the best tests to get done?

Really appreciate any answers, I honestly never thought I could go for this long like this. Humans can tolerate a lot more suffering then I imagined

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Replies to "Hi i recently learned about this disease that matches up so perfectly with what I have..."
ally2104 | @ally2104 | Aug 4, 2022

Hi, I am sorry you have been dealing with this for so long! I don’t know if dizziness, lightheadedness, and almost fainting can be caused by MALS. However I do experience these symptoms as well form something called POTS(Postural Orthostatic Tachycardia Syndrome) which is a common comorbidity of MALS.

As far as I understand there are 3 test that can be used to diagnosed MALS the first 2 to being a Doppler ultrasound with breathing protocols and a CTA with contrast and with breathing protocols. The other test being a celiac plexus block, which is usually used after a CTA and/or a Doppler to confirm a diagnosis. However a celiac plexus block if successful combined with clinical evaluation can be diagnostic on it own, even when a CTA/Doppler are normal because MALS can sometimes have a neuropathic presentation.

I personally just had to go to doctor after doctor till I found one that finally new about MALS and who finally took me seriously. So unfortunately the only thing I can say there is just keep going till you find the right doctor. Also I am not sure how helpful this is but there is a list of MALS friendly surgeons on the national MALS foundation website. Not ever doctor on there is going to be the right fit of course but it may be a place to start. It unfortunately won’t let me post the link to the list but if you google, National MALS Foundation, it should come up and list should relatively easy to find on the website.

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