← Return to "Electric Shock" type pain in my scalp!

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"Electric Shock" type pain in my scalp!

Chronic Pain | Last Active: Mar 28 10:24am | Replies (301)
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@kjelley

I have had Occipital Neuralgia for twelve years. I did have shock like symptoms, but most difficult was literally incessant pain between level 3 and 8 24/7. I’m 10 months post surgery where the removed my occipital nerves. It’s been a life changer. My pain has been reduced by 80%, I’ve cut back 75% on my pain meds, and I’m tapering off my prednisone (anti inflammatory) medication. Hopefully, I then taper completely off the pain medication.

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Replies to "I have had Occipital Neuralgia for twelve years. I did have shock like symptoms, but most..."
John, Volunteer Mentor | @johnbishop | Aug 4, 2022

Hello @kjelley, Welcome to Connect. Thank you for sharing your story. It great to hear you finally found something that provided real relief after 12 years of pain. There is another discussion you might find helpful:

-- Occipital Neuralgia: https://connect.mayoclinic.org/discussion/occipital-neuralgia/

I've tapered off of prednisone twice for Polymyalgia Rheumatica so I know that can be challenging at times. My rheumatologist had me keep a daily pain log along with the prednisone dosage for the day. When it came time to taper, if my pain level was more than a 1 or 2, I stayed at the same dose for a few days and tried again. Sometimes I had to go up by half of the previous taper but finally was able to taper completely off of the prednisone.

Did your doctor suggest a tapering schedule?

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