Hello @ralphysmom

It sounds like you have been struggling with some difficult symptoms for quite a while now. You seem to have had a lot of tests and seen a lot of specialists without getting an answer and a treatment plan. Many of us on Connect have had this experience and understand how frustrating this is.

If I were in your place, I think that I would seek a second opinion at a major medical center that is research-oriented and multidisciplinary. I'm thinking of a university medical school or a facility like Mayo Clinic. These health centers are involved in a lot of research and also see a lot of patients with hard-to-diagnose problems.

Do you live near such a medical center? Would you consider a second opinion?