Connect
← Return to MS or a cervical 5-6 problem
Discussion
Comment receiving replies
Hello @ralphysmom
It sounds like you have been struggling with some difficult symptoms for quite a while now. You seem to have had a lot of tests and seen a lot of specialists without getting an answer and a treatment plan. Many of us on Connect have had this experience and understand how frustrating this is.
If I were in your place, I think that I would seek a second opinion at a major medical center that is research-oriented and multidisciplinary. I'm thinking of a university medical school or a facility like Mayo Clinic. These health centers are involved in a lot of research and also see a lot of patients with hard-to-diagnose problems.
Do you live near such a medical center? Would you consider a second opinion?
Replies to "Hello @ralphysmom It sounds like you have been struggling with some difficult symptoms for quite a..."
Connect
Thank you for responding. I went to the Mayo Clinic in 2018 at the onset of this. I was dx'd with POTS but my sx's seem so much more than that with some sx's not applicble to POTS. Since then I have been told I dont have POTS from 3 different care providers. Maybe as time has gone on there would be more insight and a look at the characteristic and pattern of how it has evolved. I often wonder if I should go back but I dont know how that will be received.