← Return to Struggling with tingling, painful sensation on my hands

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@beth123

Hi, I was diagnosed in 2021. Went through 8 rounds of CAPOX, finished Oct. 2021. The neuropathy has become better in my hands, so much so that I do not notice it. During Chemo, I had cold sensitivity in my mouth, and hands. I wore gloves at work (I use a computer) because typing made my finger tips hurt. I drank warm liquids, just to stay hydrated. I also used lotion every night and periodically thought the day with Urea (10%). I was told it was good to use for possible hand and foot syndrome (side effect of CAPOX). I used it on my feet every night too. Did not get cracked or peeling skin at all.
My feet, however, are a different story. with the neuropathy. I just feel like I am walking in sand or have my socks bunched up.
I wanted to let you know this to encourage you and get you hope that it may not be forever. It does get better. I am still hoping it goes away in my feet or becomes so minimal, I don't notice it.

Either way, I am back to doing all the outdoor activities I did before cancer and chemo. I figure that's a win! Hoping to stay NED for a very long time.

I will keep you in my thoughts!

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Replies to "Hi, I was diagnosed in 2021. Went through 8 rounds of CAPOX, finished Oct. 2021. The..."

Thank you @beth123 for sharing. I hope you stay NED for life.

Getting back to all the outdoor activities is definitely a win as well. And we celebrate all wins - big and small.

Keep well!

Thank you for the positive response and for sharing your own experience @beth123. It has been a very rough ride in the last few weeks. It got a lot worse. I couldn't type or write. I couldn't touch stainless steel or anything naturally cold. My oncologist put me on Nurica. It relieved the pain somewhat, but the tingling seems to be progressive. I'm starting cycle 7 of 8 tomorrow, and I just am going to grin and bear it until end of my cycles.