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How to find a rheumatologist to treat fibro

Chronic Pain | Last Active: Mar 3, 2023 | Replies (13)

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@adelerose

I moved to Texas 20 years ago from Indiana and previously Ohio. One thing that was immediately apparent about the rheumatologists here, they are not interested in treating you with a diagnosis of Fibro, which I have had this diagnosis since a car accident in 86 in Ohio.
I finally got into seeing one with the help of another doctor, since she trains her staff to screen and turn down callers with fibro. She is top notch, educated and even though highly known and recommended she has tried but not been much help. There doesn't seem to be an easy answer to treating fibro. I am loosing hope. I would love to have more info on this doctor in Austin so I might look him up.
Thanks

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Replies to "I moved to Texas 20 years ago from Indiana and previously Ohio. One thing that was..."

Yes, fibromyalgia has been and continues to be a widely misunderstood syndrome, and after over 40 years it is still not accepted as a diagnosis by many.

That is why I think it is important to seek a practitioner who "believes in" and will help me manage my fibro, rather than someone in a particular specialty. Since some of the hallmarks are chronic pain, fatigue and hypersensitivity, learning to manage these and live well was my goal. In addition, I live with arthritis & lung disease. That led my primary to partner with a pain management specialist and therapists.

This is by far the most effective treatment I have ever had, but it was no "magic pill" - it involves my efforts every day to manage my pain & expectations, monitor my activity, stretch, exercise, eat healthy & rest as needed. Most of all, it requires me to be a "person who lives with conditions" and not a victim of those conditions, or a person who identifies by them.

Do you think this is something you would consider taking up with your doctor, in place of finding a sympathetic rheumatologist?
Sue