← Return to How to find a rheumatologist to treat fibro
DiscussionHow to find a rheumatologist to treat fibro
Chronic Pain | Last Active: Mar 3, 2023 | Replies (13)Comment receiving replies
Replies to "I moved to Texas 20 years ago from Indiana and previously Ohio. One thing that was..."
Connect

Yes, fibromyalgia has been and continues to be a widely misunderstood syndrome, and after over 40 years it is still not accepted as a diagnosis by many.
That is why I think it is important to seek a practitioner who "believes in" and will help me manage my fibro, rather than someone in a particular specialty. Since some of the hallmarks are chronic pain, fatigue and hypersensitivity, learning to manage these and live well was my goal. In addition, I live with arthritis & lung disease. That led my primary to partner with a pain management specialist and therapists.
This is by far the most effective treatment I have ever had, but it was no "magic pill" - it involves my efforts every day to manage my pain & expectations, monitor my activity, stretch, exercise, eat healthy & rest as needed. Most of all, it requires me to be a "person who lives with conditions" and not a victim of those conditions, or a person who identifies by them.
Do you think this is something you would consider taking up with your doctor, in place of finding a sympathetic rheumatologist?
Sue