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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)

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@jannyc

I have been diagnosed with torturous colon. Several digestive tests were negative; I tried the fodmap diet for a month with no change. My only symptom is an enlarging stomach that I first felt about 2 years ago. It is still expanding, and now up to the waist. The gastroenterologist reported there is nothing that can be done.

I am puzzled about why a torturous colon results in an expanding stomach. I don't have much gas, nor bowel or digestive problems. There is no pain, but increasing discomfort.
Has anyone had this problem and gotten help for it?

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Replies to "I have been diagnosed with torturous colon. Several digestive tests were negative; I tried the fodmap..."

Good to hear you have no gas nor digestive problems!

I have a tortuous colon, bloated abdomen and constipation which may be unrelated. My internist taps my abdomen and declares it is my intestines "air" based on the echo she hears, I guess. I don't know what to do about it except slightly reduce my discomfort and "pot belly" by taking Beano before eating beans or cruciferous veggies. The constipation is an ongoing problem. This group is the closest I've come to find support and helpful feedback.

When you say your stomach is expanding, do you mean the capacity of your internal stomach? Or a bloated abdomen?

No, but still searching. I had a colongraphy done at Duke and even though I presented with dumping syndrome for 6 weeks and then constipation, and of course the dreaded bloated stomach, the good radiologist noted that my tortuous large intestine was unremarkable. How do they expect us to get help when they are not providing accurate direction?
I hate looking like I am 9 mos pregnant and continuing to gain weight when I am barely eating. My SIBO came back negative but hopefully, I will have better advice and direction from UVA. Good luck and am praying for everyone who is suffering.