Connect
← Return to Pituitary and pNET: Can't do the things I love anymore
Discussion
Pituitary and pNET: Can't do the things I love anymore
Brain Tumor | Last Active: Oct 30, 2022 | Replies (17)Comment receiving replies
Thank you, yes that is me and my passion that the pain keeps me from. I have pNET. Thank you for informing me about the difference. I get sandostation (sp), once a month and am going through a procedure now, it's Embolization with TACE, it is three runs, I just went through part 1 of three. The Dr. decided to make it three parts instead of one and the pain I felt for 7-10 days was off the scale. Great Doctor and procedure went well. The stomach distention is much less now . 23 tumors in liver and around the same through out the general area. the tumors are all stable and not growing which is good, I'm hoping the pain will lessen also. I do not do well with pain meds. Thank you for your reply.
Anthony
Replies to "Thank you, yes that is me and my passion that the pain keeps me from. I..."
Your mention of TACE reminds me from a discussion on Mayo Clinic Connect from several years ago that was so helpful for a member choosing between TACE and SirSpheres.
- Have you had TACE or SirSpheres radiation treatment? Please share https://connect.mayoclinic.org/discussion/does-anyone-have-experience-with-receiving-tace-or-sirspheres-which-are-2/
It was such a useful discussion where 2 members shared in-depth information about each procedure to help with decision-making. It's such rich first-hand experience information that one can't get from a brochure.
How has your experience been with transarterial chemoembolization (TACE)?
Connect
Hello again @sturns
I appreciate the update. I'm glad to hear that the first treatment helped.
How often will you have the treatments?