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About to start Prolia: What's your experience?

Osteoporosis & Bone Health | Last Active: Feb 27 10:57am | Replies (126)

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@windyshores

Insurance policies need to change so that patients can all start with bone-builders like Forteo, Tymlos or Evenity, which improve bone quality. In fact, I have read that Forteo and Tymlos improve bone quality even if there is no change in bone density. (Evenity does have some anti-resorptive properties so may not improve bone quality as much: I really don't know.)

However, if I had testing (which I don't) which showed bone quality was good but bone density was not, I would still want medication. I would think the fracture risk would still be high. Picture the bones like swiss cheese. Even if the solid parts are "quality" there are still big holes!

I just post here because I, like you and others, was afraid of osteoporosis drugs. Then suffered life-changing fractures. People don't realize what can happen in seconds to bring life-long pain and disability.

You posted about one man who didn't take drugs. Do we know what happened to him? I just hope people will consider meds when their DEXA scores show significant loss of bone density. I have not had any tests on bone quality but assume that without adequate density there would be collapse anyway.

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Replies to "Insurance policies need to change so that patients can all start with bone-builders like Forteo, Tymlos..."

The only thing I know about the male was what was in the video I linked so have no further info.

If I had very poor BMD and so-so bone strength, I'd have to consider an osteoporosis drug. But porosity alone doesn't make bamboo weak, nor density make pig iron strong and I'm not certain bones are that simple. What we want is healthy bone, able to absorb shock, respond to signals from muscles to speed-up cell renewal or even grow additional bone, and similar characteristics of healthy, living bone. For some reason, I think it's possible. But will do the obvious diet and exercise and supplements in the meantime.