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Think I have Giant Cell Arteritis (or GCA)

Polymyalgia Rheumatica (PMR) | Last Active: Jan 30 8:20pm | Replies (70)
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@SusanEllen66

Yes, last night I paid attention to how I felt when I put my head on the pillow on the “bad” side. Sure enough, my scalp started to hurt, the pain in my face returned.
So, there it is…
I’m so bummed about this not only for me, but for my son. Both his father and I are plagued with Vasculitis. His dad has PMR. I have PAN in addition to the new GCA. Hopefully, there isn’t a genetic problem for him.

Every day is an adventure for sure!
Thanks for sharing your information!

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Replies to "Yes, last night I paid attention to how I felt when I put my head on..."
Teri | @tsc | Aug 1, 2022

The prednisone should be helping, @SusanEllen66. How long have you been taking it?

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marilynredder2367 | @marilynredder2367 | Aug 3, 2022

Listen Susan. GCA is not the end of the world. Take your prednisone and see if you can get on Actemra. After symptoms are gone and you have enough prednisone in your body, Actemra will help you reduce quickly. It brings down the inflammation and so ESR and CRP come down. I started before it was approved for GCA and I was part of the trials so I didn’t pay for it. I’m still on 7 mg of prednisone for my adrenals. Good luck. Ps. If the biopsy is negative so was mine but I was treated for GCA and I’m still here at 80.

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