Thank you so much for sharing your experience. We had not heard about Enterade, so I will definitely look into it. The dietician recommended Kate Farms nutritional high protein shakes that he says are superior to Ensure, Boost, and others, so he drinks those and takes digestive enzyme supplements. The prescription enzymes like Creon would cost us about 1K every 28 days, so now we are looking into a company in Canada that sells Creon for $200/28 day supply.
My husband has also decided to stop the chemo regimen he was on that was supposed to shrink the tumor so it could be respected. Three treatments were too many. He’s become to weak to tolerate that kind of dosing. We have found very interesting research about low-dose chemo that is helping people have as much quality time as possible. It’s called Metronomic Chemotherapy. Have you heard of Dr. Wm. Isacoff? We are going to talk to our oncologist about it before the next scheduled chemo. He is a pretty open-minded doctor who makes recommendations, but has said before that he will do whatever my husband wants.
Oh, and yes, my husband tested positive for BRCAII gene mutation. His mother died of breast cancer at age 40, and his sister is a 20-year breast cancer survivor. She wasn’t tested for genetic mutation, so we didn’t know until his diagnosis that BRCAII also causes pancreatic cancer, among others. The whole family knows now.
We are familiar with PanCan, also. It’s a valuable resource, especially since we have needed to learn so many things on our own.
Our oncologist has told us that there are no clinical trials around here right now that my husband would be eligible for. If we travel somewhere else, we’ll have to live there while the treatments last. We can’t afford that.
Thank you again for taking time to help us.