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Traveling with PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jul 9 9:18am | Replies (16)

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@kmeikle1

@kmb181 Don't be too discouraged. You had a big event (your move) and pushed yourself too much. If you feel this is a flare, general recommendation is to increase your dose 5 mgs. for 5-10 days and then go directly back down to where you last felt good. Once you are stable again, try not to yo-yo. Only reduce your dose when you feel good and then only by 10% (or less). Even with a good rheumatologist you have to figure out a lot of this on your own by listening to your body.

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Replies to "@kmb181 Don't be too discouraged. You had a big event (your move) and pushed yourself too..."

Thank you.
I try not to be discouraged, but 7 years has been a long time. It starts to weigh on me when I cannot do things, and the pain gets worse.
I have missed out on so many things because of it. When I push myself, I relapse. Vicious cycle.
I heard back from my Rheumatologist, and I am increasing my dose of Medrol for 5-10 days. Hopefully this will knock my pain level back down. 🤞
And, I get my Sediment, and CRP checked next week, along with all my other bw.
My Rheumatologist wants to start me on injectable Methotrexate, to try and wean me down, and maybe off the Medrol. I tried oral Methotrexate, and it made me very sick, and did not help with the pain, so I am a little hesitant.