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Arachnoid cyst or autoimmune disease

Epilepsy & Seizures | Last Active: 19 hours ago | Replies (7)

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@santosha

Hi @sally3240, I am very sorry to read your post. I agree with @amandajro, it seems you have not received proper support. I know well how this feels, as I had this experience. I went through 10 doctors until I found a caring one for my refractory epilepsy. DO NOT GIVE UP!!!
You said that you have been diagnosed with autoimmune disease. There is a book I have read, which has inspired me much in my epilepsy treatment and helped me in my battle to control my seizures and have a life with quality. It is called Brave New Medicine: A Doctor's Unconventional Path to Healing Her Autoimmune Illness by Cynthia Li MD. Perhaps it also helps you?
All the best to you!!!!
Santosha

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Replies to "Hi @sally3240, I am very sorry to read your post. I agree with @amandajro, it seems..."

Hi, no I haven't the proper care; u

Thank you for your kind words and support. I have my Mri's scheduled for September 2nd. I'm very grateful for my neurosurgeon. He also said that he will point me in the right direction for a neruoroligst. I'm still searching for a new PCP and psychiatrist and therapist. I also have a appointment with SS on August 8th. I should have been on Medicare after 2 years of being on disability. But I can't remember why it didn't happen. I'm also a widow of 16 years. My husband committed suicide on my birthday in 2006. But he wasn't found until October 17th . 2 months he was missing. It was a horrific death. One that I still can't wrap my head around. Yet I know he's with me. We were together since 8th grade. We grew up together and when he died, so did the person I used to be. It's definitely been a struggle to say the least. But I'm still here. I'm also in groups for grief and loss. I won't give up, I promise. My secret promise to my grandchildren and children is that I won't leave this earth until I KNOW that I can leave this earth knowing that they're stable and secure. I play the stock market and it definitely makes time go by faster. It keeps my mind occupied. I write as well. It's very therapeutic. My dream was to write a memoir about my life. Hopefully I'll be able to keep my dream. What I'm going through now, is something I can add to my memoir. I will definitely up that book. Reading is also something I love. Thank you for reaching out to me. ❤️