← Return to Triple Negative Breast Cancer: What treatments are you having?

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@cindyhikes

The rate of reoccurrence in the first 5 years with TNBC will depend a lot on the details from the pathology report, from the mastectomy. The tool linked above (and again here: https://breast.predict.nhs.uk), from the UK's National Health Service will give you some idea if you put in all the data from your pathology and the treatment path you chose. (Reoccurrence rate is the difference between survival rate and the deaths from other causes rate, the dotted yellow line on the graph.)

We will all be living with uncertainty, though. Everyone does whether they realize it or not. For us, it is simply undeniable. And that can be hard to deal with, emotionally, for anyone.

My wish for anyone going thru this is that they can find a way to be ok with uncertainty. I had Hodgkin's at age 35 and wasn't equipped to handle the uncertainty then. It really tore me apart, for several years after completing treatment.

Just listened to the first part of a podcast where they were discussing uncertainty, more broadly, and how to come to terms with it through meditation. I've tried but never really felt ok doing meditation, but I got some insight from listening that I think will be helpful for coping with the next few years (assuming I make it thru a few more). Maybe you will find it helpful, too. Here's the link: https://www.nytimes.com/2022/01/25/opinion/ezra-klein-podcast-ruth-ozeki.html

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Thank you for the reply and link. It would seem that reoccurrence rate is the same rate or less than getting breast cancer in your lifetime which is 12% ? I guess that is how I’m looking at it. Thank you so much !!

Ah, the old 'known knowns, the known unknowns and the unknown unknowns.'

For a lot of wonderful things that occur, there were the minutes before it happened where there was no hint that it would occur. That includes medical breakthroughs, a powerful new insight into something the body does, the minutes before two people meet whose meeting leads to the birth of a new baby on the planet. My brother used to like to think about what he called 'the minutes just before a miracle' which was his favorite part in any true story. We used to tease him about it but it was, in an odd way, an appreciation of uncertainty and paying more attention to life's clues.