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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: Nov 12 9:01am | Replies (323)Comment receiving replies
Agree with Sue. I have lichen sclerosis and have had it for 35 years or so. No cancer. The treatment is clobetasol ointment (not cream as ointment stays on longer considering we must urinate and wipe ). I was perscribed hormone vaginal tablets but refused them. The ointment twice a week for three weeks on one week off helped me a lot. I also take pregabalin max. dose and amitriptyline for pain. Works wonders for me.
Replies to "Agree with Sue. I have lichen sclerosis and have had it for 35 years or so...."
well i'm so glad i went back and saw a actual gyn, nothing against NP's i just refer a md and this dr knew alot about LS and she was all set to do a biopsy as i wanted but when she examined me she said she didnt believe i had it but a condition called Lichen simplex chromcus. it doesnt lead to vulver cancer and isnt lifelong. she has me on a scgedule as far as the clom ointment as well as a anti itch pill to take at night shortly before bed as well as using a sitz bath everyday for 5-10 minutes. i go back to see her in 3 months just so she can re-examine me. she took pictures so in 3 months she can compare the two. i am having a ultrasound next week to look at my uterus just to be on the safe side. im sure its fine but i have a telehealth appt with her next month as well to go over the ultrasound. so i am very pleased with her.
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Clobetasol cream is definitely okay to use. I can attest to that. It was prescribed by the gynecologist who heads up the "Vulvar Diseases Clinic". I have had improvement. It gets absorbed into the skin.