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Think I have Giant Cell Arteritis (or GCA)

Polymyalgia Rheumatica (PMR) | Last Active: Jan 30 8:20pm | Replies (70)
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@marilynredder2367

Sometimes and perhaps 50% of the time the biopsy is shows nothing. GCA mainly diagnosed with symptoms like you are describing. If the prednisone helps then that’s what it is. I have had GCA for many many years. Ii didn’t cause blindness but I have other odds issues. Unfortunately doctors know very little about GCA. Especially when it involves the tongue.

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Replies to "Sometimes and perhaps 50% of the time the biopsy is shows nothing. GCA mainly diagnosed with..."
SusanEllen66 | @SusanEllen66 | Aug 1, 2022

Thanks so much. I’m sorry you have been dealing with this situation.
I’m finding that pressure on my left side is making the symptoms worse. So there it is…right now I’m taking 60mg of prednisone.
What happens with your tongue?

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