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About to start Prolia: What's your experience?

Osteoporosis & Bone Health | Last Active: Feb 27 10:57am | Replies (126)

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@windyshores

@callalloo the two year limit on Forteo has already been lifted.

Evista and other SERMs have serious risks too: blood clots, uterine cancer. @lbmorgan44 is aware of these but I don't want anyone on this forum to think that is a magical answer to our dilemma.

I am not as unhappy with the situation now that I can tolerate a med. Tymlos may also lose the two year limit, but bone growth slows after the first year. Depending on monitoring I can continue, or take Evenity, or, as I have said, try a partial dose of Reclast and hope for breaks, and would have further Tymlos in the wings if needed. We all need a doc with this kind of flexibility.

@asifhassan you might want a second opinion. Is this your PCP's recommendation to medicate, or a specialist. Many docs are not medicating osteopenia. There are many factors to consider. The femur neck is always much worse in my scans. My report says it is not useful to measure changes. I don't know why. I guess I have always thought that arthritis is throwing the DEXA off, but noone has ever told me that. I didn't need to investigate because the rest of my scores were bad, but if I were you, I would.

Keith McCormick, who wrote "The Whole Body Approach to Osteoporosis" might be helpful. I like him because he is not anti-med.

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Replies to "@callalloo the two year limit on Forteo has already been lifted. Evista and other SERMs have..."

Thanks for the update on Forteo.

I'm putting my hopes on bone strength as a critical parameter and hope to get that tested. In one case in the video below, a young man had BMD T-score of -3.0 but the tests (hopefully accurate) showed good bone strength so he skipped osteoporosis meds. I suspect that I lost a lot of bone density early when I was working all hours in NYC and living on coffee and cigarettes and a hit-or-miss diet of too-rich client dinners and salad lunches. Or worse. Buy I didn't do a DEXA test so don't know. IF bone strength is decent, I'll be less concerned about osteopenia since it's at least been stable over 6+ years so far.

Best possible wishes for all of us having to make decisions without any clear perfect choices.
https://m.youtube.com/watch?v=xwx9JMne3ms