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Arachnoid cyst or autoimmune disease

Epilepsy & Seizures | Last Active: Jun 26 6:01pm | Replies (7)

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@amandajro

Hello @sally3240. You have sure been through quite a lot coupled with what seems to be a lack of support and proper diagnosis. I am glad to read you have an upcoming appointment with a rheumatologist in August, however, I am sure that date feels like a lifetime away when you are going through so much.

There are several members who have shared their experiences with internal vibrations and are talking about them in this discussion if you're interested in connecting on that symptom.
- Internal Vibrations: https://connect.mayoclinic.org/discussion/internal-viberations/

There is also a separate discussion on arachnoid cysts that you may be interested in here.
- Arachnoid Cyst: https://connect.mayoclinic.org/discussion/arachnoid-cyst/

What does your August appointment entail?

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Replies to "Hello @sally3240. You have sure been through quite a lot coupled with what seems to be..."

Thank you for reaching out to me. It does feel lonely at times. Alot actually. I don't have much support. I'm also a widow. My husband committed suicide in 2006, on my birthday. But he wasn't found until October 17th. It was a horrific death. I know he's with me. He visits me in my dreams. And I feel him all around me. He was my life. We were together since 8th grade. We grew up together and when he died, so did the person I used to be. I miss the life I once knew. I don't mean to go on about this. But it's part of who I am. I'm in support groups for grief and loss.
When I saw my neurosurgeon, he told me that he was going to point me in the right direction and refer me to a good neruoroligst. He saw that I wasn't having the right treatment. I haven't had a doctor treat me right until I met him. My Mri's are scheduled for September 2nd. I'm trying to keep my mind occupied during these waiting periods. I love playing the stock market and it definitely makes time go by faster. I feel more confident now that I have a good doctor. I'm still trying to find a new PCP. Plus I'm trying to find a new psychiatrist and therapist. I have a appointment with SS on August 8th. Hopefully I'll get Medicare. I should have been on Medicare 2 years after my disability, but I can't remember why it didn't happen. I've lost many years of my memory as well. It's definitely been a struggle. But I'm still here. I'm a fighter and I won't give up. ❤️