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DiscussionArachnoid cyst or autoimmune disease
Epilepsy & Seizures | Last Active: Jun 26 6:01pm | Replies (7)Comment receiving replies
Replies to "Hello @sally3240. You have sure been through quite a lot coupled with what seems to be..."
Thank you for reaching out to me. It does feel lonely at times. Alot actually. I don't have much support. I'm also a widow. My husband committed suicide in 2006, on my birthday. But he wasn't found until October 17th. It was a horrific death. I know he's with me. He visits me in my dreams. And I feel him all around me. He was my life. We were together since 8th grade. We grew up together and when he died, so did the person I used to be. I miss the life I once knew. I don't mean to go on about this. But it's part of who I am. I'm in support groups for grief and loss.
When I saw my neurosurgeon, he told me that he was going to point me in the right direction and refer me to a good neruoroligst. He saw that I wasn't having the right treatment. I haven't had a doctor treat me right until I met him. My Mri's are scheduled for September 2nd. I'm trying to keep my mind occupied during these waiting periods. I love playing the stock market and it definitely makes time go by faster. I feel more confident now that I have a good doctor. I'm still trying to find a new PCP. Plus I'm trying to find a new psychiatrist and therapist. I have a appointment with SS on August 8th. Hopefully I'll get Medicare. I should have been on Medicare 2 years after my disability, but I can't remember why it didn't happen. I've lost many years of my memory as well. It's definitely been a struggle. But I'm still here. I'm a fighter and I won't give up. ❤️