← Return to Think I have Giant Cell Arteritis (or GCA)

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@tsc

Hi @SusanEllen66, Before I was diagnosed with GCA, I lost vision in my right eye three times for about ten minutes each time. All I could see was white, but it went away. That was a few months before I had the temporal artery biopsy. A good friend, a doctor, told me that if I ever had difficulty seeing again to go to an emergency room immediately, as I could go blind.. My rheumatologist had the same reaction as your doctors when I told him I saw white, not black. He said it was unusual. Sometimes prednisone is prescribed before the tempioral artery biopsy. Have you had the blood tests for inflammation?
My doctor friend told me this is one of the only emergencies in rheumatology! I wish you the best, hope you don't have to wait too long for the biopsy, and hope your doctors will prescribe prednisone in the meantime.

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Replies to "Hi @SusanEllen66, Before I was diagnosed with GCA, I lost vision in my right eye three..."

Thanks so much for sharing. Knowing that someone else saw WHITE is comforting to me! I get strange looks when I tell my health care providers that I didn’t see black.
I’m taking 60mg of prednisone right now, and waiting for an appointment with a vascular surgeon.
My blood tests never show my inflammation. I’ve had Vasculitis since 2015…