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PRRT for NETs: Questioning whether I should continue or not

Neuroendocrine Tumors (NETs) | Last Active: Oct 22, 2023 | Replies (24)
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@immmm

My dear friend has had the 4 PRRT. She was ready to quit after 3 because of her side effects. Brain fog, severe fatigue, achy joints, hair loss. She persevered and her chromagroninA went from 22,000 to 9,000. She has her Scans next month and we hope her scans show what the CgA does—That was over time as it continues to work after treatments stop. She has Mets to liver, origin in small intestines

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Replies to "My dear friend has had the 4 PRRT. She was ready to quit after 3 because..."
Teresa, Volunteer Mentor | @hopeful33250 | Aug 1, 2022

Hello @immmm

I appreciate you sharing that good report of your friend's decrease in the CgA levels. I hope, as you do, that her scans next month also show an improvement.

Would you encourage your friend to join our NETs support group meeting (via Zoom) on Thursday, August 4? Here is a link to the meeting information. https://connect.mayoclinic.org/discussion/zoom-support-group-august-4th/.

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