Hi Terri,
Sending you hugs and prayers as you walk this path. I have read some of your posts, thank you for sharing and guiding us as we walk this path with you.
On Steroids : Before the MAC diagnosis, 2 wks ago, I went ER because I was lost my voice and was finding it hard to breath even after using my oxygen, inhaler, neb, ProAir, aerobika, trilogy, nasal rinse, ipotropium etc. and the dr. gave me 2 breathing treatments and steroids. When my pulmonologist returned from vacation she yelled at me for taking steroids. Helen in the above comments states she learned from this site that steroids were bad for broncectasis. I haven’t researched this but need to.
I was also Rx’s 10% saline and after a year of absolutely hating the harshness of that asked my new dr. To change it to 7%. It’s easier but I’m nebulizing 2x a day now.
These diseases are getting worse very fast now after progressing slowly for so long