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Has anyone had surgery for a Secretory Meningioma?

Posted by feeling @feeling, Jul 16, 2022

Has anyone had surgery for a secretory meningioma and how long ago..were you tired for a long time? Can you feel your head? Did it come back?

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Amanda Roe | @amandajro | Jul 29, 2022

Hello @feeling and welcome to Mayo Clinic Connect. I wonder if we may be able to start with me asking you for a bit more information on your particular experience? Did you have surgery for a secretory meningioma and are you experiencing fatigue and lack of feeling in your head? If so, how long ago was your surgery?

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1 reply
feeling | @feeling | Jul 30, 2022
In reply to @amandajro "Hello @feeling and welcome to Mayo Clinic Connect. I wonder if we may be able to..." + (show)
@amandajro

Hello @feeling and welcome to Mayo Clinic Connect. I wonder if we may be able to start with me asking you for a bit more information on your particular experience? Did you have surgery for a secretory meningioma and are you experiencing fatigue and lack of feeling in your head? If so, how long ago was your surgery?

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Yes I am tired all the time. The top of my head is still numb in areas..It’s like I have something on my head or like it’s not mine..also getting headaches..My surgery was 5 months ago and it was found to be a secretory meningioma frontal right lobe and they got it all

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1 reply
Amanda Roe | @amandajro | Jul 30, 2022
In reply to @feeling "Yes I am tired all the time. The top of my head is still numb in..." + (show)
@feeling

Yes I am tired all the time. The top of my head is still numb in areas..It’s like I have something on my head or like it’s not mine..also getting headaches..My surgery was 5 months ago and it was found to be a secretory meningioma frontal right lobe and they got it all

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@feeling it is so wonderful to hear they were able to get all of your meningioma. That said, have you explained your on-going symptoms with your doctor at a follow up or have you been dealing with these symptoms on your own?

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feeling | @feeling | Jul 31, 2022
In reply to @amandajro "@feeling it is so wonderful to hear they were able to get all of your meningioma...." + (show)
@amandajro

@feeling it is so wonderful to hear they were able to get all of your meningioma. That said, have you explained your on-going symptoms with your doctor at a follow up or have you been dealing with these symptoms on your own?

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I went in the beginning of June for follow up and they didn’t seem worried about it..

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Amanda Roe | @amandajro | Jul 31, 2022
In reply to @feeling "I went in the beginning of June for follow up and they didn’t seem worried about..." + (show)
@feeling

I went in the beginning of June for follow up and they didn’t seem worried about it..

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@feeling, did they give you any options or just say it was "normal"?

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feeling | @feeling | Jul 31, 2022
In reply to @amandajro "@feeling, did they give you any options or just say it was "normal"?" + (show)
@amandajro

@feeling, did they give you any options or just say it was "normal"?

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They didn’t give me any options..I think I’ll call this week..

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