Connect
← Return to Lobular Breast Cancer: Let's share and support each other
Discussion
Lobular Breast Cancer: Let's share and support each other
Breast Cancer | Last Active: Mar 10 10:12pm | Replies (344)Comment receiving replies
@windyshores I too am interested in hearing more about how various doctors are following ILC for future metastasis. Since I opted for the bi lateral mastectomy (my first Lobular was in situ in the left breast and the second time was invasive in my right breast) I get visual exams every 6 months to 9 months but wondering if an MRI might be a good idea in the near future? They say I'll feel it on my chest wall but it's very hard to determine because I have various pains and bumps and lumps it seems, mostly from my lymphedema. Curious about this and hope people will share.
Replies to "@windyshores I too am interested in hearing more about how various doctors are following ILC for..."
Connect
I had invasive lobular 2a no lymph nodes. Had left side masectomy no reconstruction. Didn't want more surgery. They alternate every year with MRI because I have very dense breasts and it is harder to find on mammo alone. You might ask your team if that could be done for you. They also do a diagnosticmammogram we don't have 3D ones in the Maratimes Canada.
I get a visual check every 6 months and they felt something by arm pit which she thought was scar tissue but sent me to get an ultrasound to have in case something started to grow. Ultrasound turned out fine. So they know lumps and bumps and which are bad ones. I have fibrodenomas in right breast. I have a little lymphedema in arm pit and do espxcersizes to help with arm tightness. I hope you are doing well and I am two years out from treatment and it gets a little easier. I try not to worry to much and it helps knowing for 5 years a Dr sees you every 6 months. Take care