Hi. I only keep track in my head, since I see my Rheumatologist every 6 weeks. My husband is an Ophthalmologist, and has a lot of patients with this condition. There is no pattern to my pain and dosage is regulated. This is the second time I am tapering off. When I was first having the pain in the beginning it didn't show up in my blood tests, but when it finally did, my CRP and Sed rate were extremely high. Scary, and my husband got involved before I saw the Rheumatologist. I've never had scalp pain. In beginning it was hips and shoulders. Now its my shoulders and hands (which happens in rare cases). My Rheumatologist emphasizes that we treat the condition and not symptoms, as long as the pain is bearable. I just want to be off these steroids since they damage the bones and raise the blood sugars. Not fun.