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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)
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@flymetothemoon

It sounds like you tapered too quickly. Tapering off Prednisone is a very slow process. I am doing it for the second time and it is months to finally get down to 2 mg. My husband has a lot of patients with this condition since it can effect the eyes if it is not treated properly.

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Replies to "It sounds like you tapered too quickly. Tapering off Prednisone is a very slow process. I..."
John, Volunteer Mentor | @johnbishop | Jul 31, 2022

Hello @flymetothemoon, Welcome to Connect. I saw in your first post that you have been dealing with PMR for more than 3 years. I agree, tapering off of prednisone is a slow process and everyone is different. Much like you, it took me 3 and half years to taper off of prednisone with the last 6 months going back and forth between 1 mg and 1/2 mg until I could finally stop taking it with little to no pain in the morning when I woke up.

I was diagnosed by a rheumatolgist but my primary care doc was always asking me if I had any scalp pain, pain in the temple area or vision problems for the reason you mentioned worrying that it might be Giant Cell Arteritis.

Do you keep track of your pain and dosage in a daily log?

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