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The math of invasive breast cancer risk for LCIS

Breast Cancer | Last Active: 6 days ago | Replies (46)

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@lisakinpa

This is disconcerting because LCIS isn’t usually found until there’s been a biopsy for another reason?

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Replies to "This is disconcerting because LCIS isn’t usually found until there’s been a biopsy for another reason?"

Langold | @rarelybees2889 | Feb 22, 2023

Yes, thats true. Its not a common find either, being rare.
Luckily I have had no problems or cancer develop from watchful waiting. Tamoxifen has some very bad side effects, including cognitive issues. Plus removing all estrogen is not great for the body, if one doesn't actually have breast cancer and LCIS is not cancer.
I did a lot of research on the drug and felt awful on it.
We need better safer options for LCIS and other neoplasms and more research on what our risks really are.

joannemiceli | @joannemiceli | Apr 8 6:06pm

This is exactly why we don't really know the risk. If only women with biopsies have been diagnosed with LCIS, that means maybe 50% of women actually have LCIS and never had a biopsy, or cancer. I really think our risk is lower than they calculate.